For families like mine and for thousands of people with intellectual and developmental disabilities (I/DD) across New York state, Medicaid is far more than a government program — it is a lifeline. Congress is currently discussing a proposal to save $880 billion, which its own budget office says cannot be accomplished without cuts to Medicaid.
As the parent of a son with autism and a board member of The Arc New York — the largest nonprofit organization supporting people with I/DD in the state — I urge our elected officials to reject any cuts to federal Medicaid funding. Cutting this critical funding would undermine decades of progress for people with disabilities and dismantle the essential support system that allows them to live with dignity, independence and opportunity.
Home and community-based services for people with disabilities are funded almost entirely by Medicaid. These services encompass residential support, employment and day programs, behavioral health services, medical care, education and more. I understand the true impact of this array of supports, because I live them.
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I have an adult son with autism and Medicaid-funded supports have enabled him to find and maintain a job in the community. He reports to work every Thursday afternoon at a local business. A skilled employment specialist provides necessary supports for him to complete tasks. He is proud of his work and enjoys purchasing a snack with money earned.
In addition, he works with a skilled community habilitation specialist. The specialist helps my son work toward achieving the goals outlined in his service plan, including those related to community inclusion and integration. Trips to the YMCA, restaurants, movie theaters, and grocery shopping provide opportunities for practicing independent living skills and for socialization with others besides family members.
Families of people with disabilities understand the value of Medicaid. And we understand what cuts would mean for our loved ones. Waitlists for services would grow. Providers would be forced to shut down programs or lay off staff. Families, who are already balancing work, caregiving and advocacy, would be left scrambling to try to fill the void.
Our society is stronger when every person has the opportunity to contribute and thrive. I am calling on state and federal lawmakers to reject any proposals to cut Medicaid.
Donna Pasik, of Auburn, is a board member of The Arc New York and chair of the board of directors of Arc chapter Mozaic.
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